Memorial
Day:
Being
the mother of two vets, the ex-wife of a vet, the daughter of a vet, and so on
all the way back to the Revolutionary War, I do not think of today has just a
day for a good ole BBQ. I don’t think there is anything wrong with having a BBQ
as long as you remember those who gave us the freedom to do so. Due to lack of funds, health, and weather, we
choose to stay home and observe the day quietly. I hope that no matter what you
did today that you thought about those who are willing to wear the uniform and
write that blank check.
Today
has been a good day. I am finding that I am still getting tired very quickly
but that is okay. I try to take all of the tasks I would like to do and break
them down into manageable bite size pieces that I can handle. I do give myself
deadlines to get things done by but they are not carved in stone. Each day I
look at my to do list and see what I can do for the moment. I do that cross it off
my list and say well done. I am finding
that if I work based on time rather that how far I have gotten I actually am
getting more things done.
I
have rewritten my medical information paper that I take to the ER. The last one
seemed to confuse some nurses. Some of it is because the hospital pharmacy does
things very differently than the public one does. (How was I supposed to know
that?) Then the other problem was caused by a lack of common sense. I had just
one nurse who thought that while I was vomiting was a great time to give me a
pill to prevent vomiting!!! I have learn, at least for me, that if I take that
pill about 1 hour before I eat, the food stays in me much better. So now I have
a two page sheet of information. The first tells who I am, my medical history,
and the name of the ONLY doctor I refuse to allow to treat me. The second tells
them exactly when I take each medication and the grand total amount of pain
medication it take. They don’t make it in a pill that size. Then the fact that
I take the vomiting medication 1 hour before my next meal is also spelled out
on this sheet. I hope this will reduce the confusion the next time I have to
get admitted. I also plan to carry two copies of these papers, one for them and
one for me to hang onto so that I can show it to them and ask them what they
don’t understand.
Hair falling out is
a good thing!
My
hair is falling out by the handfuls. Everyone yesterday said that they would
find that very upsetting. I was told that if your hair is not falling out then
the chemo isn’t working. Now while in
the hospital the head oncology doctor, Dr. Hu said she feel that the growth on
my neck is down by about ½ of what it was and it is softer. So those two
factors and then the hair falling out is a great sign to me. I believe that the
chemo is working and doing just what we want it to. So if going bald means the chemo is working I
will be very quick to say that in my case BALD IS BEAUTIFUL, and bring it on!!
Now that you have read this and if my information is correct please be happy
for me. I expect to wear hats, wigs, wraps, and other things to cover my head.
But I also just might go out bald. It depends on what they tell me about
sunburn on the scalp. Just one little step at a time.
I
have had a great quiet day and I hope each of you have too. Love to one and all.
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