Saturday, December 8, 2012

More about this past week.



Yesterday, I told you that there was more to tell about the last few days. Tuesday on the way to the doctor’s office Frank had to stop and wait for a mother and two young deer moved out of the road. It was wonderful to just sit there for a moment and watch them. They finally turned and turned back the way they had come and ran back into the woods. The smaller deer did not have any spots, and the bottoms of their tails were bright white.  I didn’t notice the signs on any antlers on either of them. In fact I almost didn’t see the 2nd young deer because of how far back in the woods it was, the other two were out on the road. This happened around 9 am, which I thought was very late in the day time to see them.

Now to update you on my G-tube, the doctor that put in says there are only three reasons to replace it. 1) it gets pulled out, 2) it gets clogged and can’t be cleared out, or 3) It becomes dried and brittle. None of those things have happened she says that I am doing a very good job of keeping the site nice and clean. I only need to go back to see her have gotten into a problem. She cleaned the area and tightens the G-tube down.

 It was after I she had done the exam that she saw my backside has I got off her exam table. Then she became alarmed at the size of the swelling she saw. She said for it to be that size than my hip had to be broken, dislocated or a very large hematoma.  She called the ER and told that she was sending me directly over to be examined. She hoped that would speed things up things for us at the ER but it didn’t help. After all the new ER department had only been open for a day. Some equipment didn’t work and it turned out that it just hadn’t been plugged in. The new ER has close to twice has many patient treatment area’s but they don’t have any more staff to care for the patients, so I ended up waiting an awful long time to go upstairs to my hospital room. I registered into the ER at 10:30 am on Tuesday, but did not get admitted to my room until 4:30 am on Wednesday.  That was well over 12 hours after they made the discussion to admit me.

One of the good things that happened to me was that they listened to me about my night feedings and how they needed to be done in two parts. I told them in them in the ER    that I would fight them if they didn’t do it my way. I know what works in my crazy sick ole body. I did not get the feeding that night because they did not have the information before noon on Tuesday.

I think that it was on Wednesday that a technician that wanted to draw blood from my port sight. He was told that it was in use but he didn’t care about that. That could be stopped; he could draw the blood and then started up all over again.  My nurses would not allow him to do this. They had to get the doctor to write orders in my chart to stop this technician. It was hours later when a different technician came and drew the blood from my arm the way that we needed it to be done.

The most interesting thing that happened was that three people from management came in to ask me a lot of questions about my care. They spent over 30 minutes talking with me. They asked all types of questions, the only thing that they didn’t ask about was the food.  Although they wanted to know about this hospital stay; but I did not hesitate to tell them that twice this year I had bad experiences in this hospital.  They took notes and listened carefully to everything I had to say.

No one wants to be a patient in a hospital, I can only think of one good reason to be in the hospital that is to have a baby. But the staff made this visit a good one.

Now to get to today’s events. My nurse Cookie came to see how I was doing. On Wednesday, while in the hospital an IV Nurse said the wrong port needle had been used in my port. They had not used a blue disk which somehow is supposed prevent infection.  This needle comes with a blue tubing attached to it. I told Cookie all about it. She explained to me that the hospital and the VNA get their supplies from different suppliers. She is going to ask her supervisors to look into what the IV Nurse said to try to make the patients care is contestant. Now I want EVERYONE to know that I get great care from the VNA.  Cookie and the other VNA nurses that have treated me are great people.

A couple of hours after Cookie left I started feeling sick. I have a sore throat, upset stomach, and a headache. I have gone to bed and taken a couple hour naps. But I am not running a temperature. I will keep myself  quiet and stay home from Church tomorrow. I know that I need that rest.

Friday, December 7, 2012

Sorry about the week of silence but here is what happened.



To my friends and family I am very sorry the person that I had asked to update my blog let me down and didn’t do it.  So here is what happened, I took a nasty fall on Monday. On Tuesday I had an appointment with my GI doctor and I mentioned the fall. She took a good look at my left hip and sent me right to the ER at Baystate Medical Center. She said it was either broken, dislocated or a very bad hematoma. It turned out to be the hematoma. They estimated that 2 units of blood were in my hip and they put me in the hospital so that they could give me more blood. In total they gave me 3 units of blood over a 2 day period. That made me feel much stronger and the swelling has come down nicely. But it needs to come down even more. It is now Friday and I am home and I am about to take a nap. I am doing very well.

There is more to tell but I will let you know the other stuff after I have taken my nap. But I am also going to look for someone else that I can I trust will do it will do my blog for me so we don’t have this problem again.

Bye for now.

Monday, December 3, 2012

I have 2 left feet and forgot how to walk



Today did not start out very good. I took a nasty fall in my bedroom, but I am alright. I hit my head, but was not knocked out, I landed on my left side. I have a not on my head, a medium bruise on my upper left arm and a very large bruise on my upper left thigh. Although my leg hurts a lot I am doing just fine. I was able to get myself up without help. I also took the entire day very slow and quietly.

In the morning I go and see the doctor about my G-tube and get changing that started. I expect that I will have the new tube in before Christmas.  Tomorrow I should find out if the doctor wants to do an x-ray of my abdomen before she does the procedure. Then I expect that we will plan the date for the procedure to be done. I think this will be a quick and simple visit with her.

I don’t want any of you to worry about me. I contacted my visiting nurse and we agreed that I am okay. She did not come over but I promised her that if my condition got worse I would let her know and have her come and check things out. But they did not, get any worse.

Sunday, December 2, 2012

The Christmas Season



It has been a long but good day. Not only was I able to attend Church this morning but Mom and I were also able to watch the Christmas Devotional by the First Presidency of the Church. We heard lovely messages about both giving and receiving and heard wonderful Christmas music.

Again today I have an appetite and was able to enjoy eating food, not just having the formula. This is encouraging to me: I would like to put on about 5 of the pounds that I lost last week, or at least not lose any more weight.  I am even enjoying some snack food this evening.

Of course being part of the weekend there has been no changes to my medical care. We all know that only happens on the weekends if there is some sort of emergency and thankfully there has not been one for several weeks.

Seeing has we are starting the Christmas Season, it is my prayer that we will be able to keep the true meaning of Christmas in our hearts and minds. For a lot of reasons I will not be giving much in the line of gifts or sending out many cards. Please accept that it is not because of a lack of love for each and every one of you but other things have prevented it. I must live within my means and do what is right for me physically. My physical activity is very limited due to my health. Please know that all of you are in my thoughts and prayers this time of year and all year through.

Saturday, December 1, 2012

A late Turkey Dinner



Today was a quiet day, yet I am very tired. We enjoyed a turkey dinner tonight. Mom fixed full turkey and she says it is the first time in 11 years that she has done that. It took a lot out of her, the next time she wants to have a turkey dinner we are going to just get a turkey breast.  I actually had an appetite and ate some dinner, oh, it was good! Mom is a very good cook.

Today I am having a lot of pain across my lower back. After I post this on my blog I am going to head to bed. I want to get plenty of rest for Church in the morning. I am planning to only go to the Sacrament meeting; at this time my pain level is such that I am only comfortable for about 1 hour sitting in the Church pews. Mom and I are going to the Springfield Chapel because it is so much closer to our house. Brooke is being a sweetheart about it and dropping us off and then will come back after us.